After my ‘Caps for Chemo’ promotion, I’ve been receiving a lot of information requesting help in any way that I can for others in need. I’m hoping that I have enough followers with Katy’s Creations now that I can stir up a few more people to help out!
One of the photographers in Wheeling is participating in “Alexander’s Auction”, which is an effort to raise money for a family with a very sick baby at home. Alexander has Wolf-Hirschhorn Syndrome and, among other symptoms from this syndrome, has seizures all of the time.
His parents are constantly in fear that their sweet, little one-year-0ld might have a seizure at night while they are sleeping and not know that it’s happening. One way they are hoping to bring some relief to their lives is to bring a seizure dog into their family, who will be able to alert Alexander’s parents in emergency cases.
Heather of Snapshot Photography is doing her part by auctioning off the Ultimate Summer Photo Package which includes all sorts of fantastic photo products along with a full session & prints….nearly $500 worth of goodies.
Please take a minute to check out the auction and consider bidding on the photo package or one of many other services & products being auctioned off. Even more importantly, please consider sharing this link with your family & friends through email, Facebook, twitter and/or whatever other communications you use!
Here is the link to Heather’s blog: http://www.snapshotphotography.com/auction/alexander.html
And the direct link to other items being auctioned off to help this family in need: http://alexandersauction.blogspot.com
Katie “The Warrior” Benefit Dinner
Katie Scharlow was a school-mate of my sister’s and after being diagnosed with cancer, going through the treatment, beating it and being cancer free for TEN years…she’s back in treatments again.
Katie and her family are very positive, strong, great people and it’s a shame that they are facing the “c” word again. They live in Reed City, Michigan but all of Katie’s treatments will be as an in-patient in Grand Rapids and the commute won’t be easy on them.
A benefit is being held in her honor on Saturday, July 23 in the Reed City High School cafeteria. I know that details are still being worked out, but there will be a spaghetti dinner, auction and bake sale to help rally some support from the community.
For more information, please visit this ‘event’ page on Facebook: http://www.facebook.com/event.php?eid=191227677592362
To follow Katie and her family during their battle, they have a CarePage set up. You have to register in order to log in, but the Scharlows have been doing a pretty great job of keeping everyone informed of her progress. Here’s the site: www.carepages.com/carepages/KatietheWARRIOR
I borrowed this picture from the benefit’s page. I happen to love this quote from Christopher Robin. It’s awesome that she chose it for her picture as well!
CHARGE Syndrome Foundation
And finally, I’m soliciting some donations and helping spread the word for my family. My gorgeous nephew, Mighty Max, was born two months early and diagnosed with CHARGE Syndrome. He has faced many life threatening conditions and surgeries but is an incredible fighter and has blessed many lives with his strong character, sweet giggles, and beautiful inner spirit.
Another thing about Maxwell? He’s a Cookie Monster! 🙂
Rather than try to explain it myself, I’ve copied this from the donation request form:
The CHARGE Syndrome Foundation, Inc. will be hosting our 10th International Conference in Orlando, Florida on July 28-31, 2011. This is the largest gathering in the world of individuals with CHARGE syndrome and their families. During the conference, we will be having our 7th Silent
Auction. We hope you will participate in this fun event by donating items for the auction.
The CHARGE Syndrome Foundation is a parent run, 501(c)3 charitable organization. The silent auction is a major fundraiser for the Foundation. Proceeds from the auction help offset the costs of the conference so that we can make this life changing event accessible for many families. No donation is too large or too small.
CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss and balance problems which delay their development and communication. All are likely to require medical and educational inter
vention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.
INTERESTED IN DONATING? Need more information? Please send me an email (firstname.lastname@example.org) and I would love to answer any questions you might have!
Thank you so much for taking the time to read this! It means a lot to me that I can help spread the word and help those that can’t always help themselves. You guys are the best!